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Peer Reviewed Papers, Books, Chapters

Year Title Citation Authors
1. 2010 Human Subjects Protections in Community Engaged Research: A Research Ethics Framework Journal of Empirical Research on Human Research Ethics (JERHRE). 2010, 5(1): 5-17.
2. 2010 How Different Conceptions of Risk are Used in the Organ Market Debate American Journal of Transplantation 2010 forthcoming
3. 2010 Good Ethics requires Good Science: Why Transplant Programs Should NOT Disclose Misattributed Parentage American Journal of Transplantation 2010 forthcoming.
4. 2010 What the Medical Excuse Teaches Us about the Donor as Patient. American Journal of Transplantation 2010 forthcoming.
5. 2010 Policy Statement: Children as Hematopoietic Stem Cell Donors. Pediatrics 2010; forthcoming.
6. 2010 An Ethical and Policy Analysis of Elective Transplantation for Metabolic Conditions Diagnosed by Newborn Screening Journal of Pediatrics, 2010; 156: 139-144.
7. 2010 Population Screening for Genetic Disorders in the 21st Century: Evidence, Economics, and Ethics Public Health Genomics, 2010;13:106 115.
8. 2010 The Challenges of Collaboration for Academic and Community Partners in a Research Partnership: Points to Consider. Journal of Empirical Research on Human Research Ethics (JERHRE). 2010, 5(1): 19-31.
9. 2010 Reactions of Pediatricians to Refusals of Medical Treatment for Minors. Journal of Adolescent Health, 2010 in press.
10. 2010 Nine Key Functions for a Human Subjects Protection Program for Community Engaged Research: Points to Consider. Journal of Empirical Research on Human Research Ethics (JERHRE). 2010, 5(1): 33-47.
11. 2010 Saving Lives is More Important Than Abstract Moral Concerns: Financial Incentives Should be Used to Increase Organ Donation Annals of Thoracic Surgery, 2009; 88: 1053 61.
12. 2010 When Physicians Forego the Doctor-Patient Relationship, should they elect to SELF-PRESCRIBE or CURBSIDE? An empirical and ethical analysis. Journal of Medical Ethics. 2010;36:19 23
13. 2009 Botkin Committee on Bioethics. Forgoing Medically Provided Nutrition and Hydration in Children. Pediatrics 2009; 124: 813-822.
14. 2009 Qualitative insights into how pediatric pay-for-performance programs are being designed Ambulatory Pediatrics, 2009; 9(3):185-91.
15. 2009 A Descriptive and Moral Evaluation of Providing Informal Medical Care to Ones Own Children. Journal of Clinical Ethics, 2009; 20(4): 353-361.
16. 2009 From Genetics to Genomics: Ethics, Policy, and Parental Decision-Making Journal of Pediatric Psychology, 2009 34: 639-647; doi:10.1093/jpepsy/jsn075
17. 2009 Pediatricians Attitudes towards Resuscitation in Children with Chronic Illnesses Pediatric Critical Care Medicine, 2009, 10:369 374
18. 2009 Genetic Health Professionals' Attitudes about Fragile X Population Screening American Journal of Medical Genetics, 2009, 149A:626:632.
19. 2009 Maternal Knowledge and Attitudes about Newborn Screening for Sickle Cell Disease and Cystic Fibrosis American Journal of Medical Genetics, 2009, 149A:2424 2429.
20. 2009 Pediatrician-Family-Patient Relationships: Managing the Boundaries Pediatrics 2009; 124: 1685-1688.
21. 2009 Physician Refusal to Provide Information or Treatment on the Basis of Claims of Conscience. Pediatrics 2009; 124: 1689-1693.
22. 2009 A Pilot Study to Explore Knowledge, Attitudes and Beliefs about Sickle Cell Trait and Disease Journal of the National Medical Association. 2009 ;101:1163-1172
23. 2009 Ethics and Professionalism in the Pediatric Curriculum: A Survey of Pediatric Program Directors Pediatrics, 2009; 124: 1143-1151.
24. 2009 Hypoplastic Left Heart Syndrome: A paradigm case for examining conscientious objection in pediatric practice. Journal of Pediatrics, 2009; 155: 12-15.
25. 2008 Pediatricians attitudes and practices towards HPV Vaccination. Acta Paediatrica. 2008, 97: 1550-1556.
26. 2008 Pediatricians Attitudes about Screening Newborns for Infectious Diseases. Maternal and Child Health Journal, 2010; 14: 174-183.
27. 2008 Pediatricians are More Supportive of the HPV Vaccine than the General Public Southern Medical Journal, 2008 101(12):1216-1221.
28. 2008 Statement: Minors as Living Solid Organ Donors Pediatrics, 2008; 122: 454-461.
29. 2008 Newborn Screening for Cystic Fibrosis: A Lesson in public health disparities. Journal of Pediatrics, 2008; 153: 308-313.
30. 2008 Preservation of Fertility in Pediatric and Adolescent Patients with Cancer. Pediatrics 2008; 121: 31461-e1469.
31. 2008 An Empirical Investigation of Physicians Attitudes towards Intrasibling Kidney Donation by Minor Twins Transplantation, 2008; 85: 1235-1239.
32. 2008 Potential Inefficiency of a Proposed Efficiency Model for Kidney Allocation American Journal of Kidney Diseases, 2008, 51; 4: 545-548.
33. 2008 Empirical Data about Womens Attitudes towards A Hypothetical Pediatric Biobank American Journal of Medical Genetics, part A. 2008: 146A: 397-304.
34. 2008 Empirical Data about Womens Attitudes towards A Biobank Focused on Pregnancy Outcomes. American Journal of Medical Genetics, part A. 2008: 146A: 305-311.
35. 2007 American Academy of Pediatrics. Professionalism in Pediatrics: Statement of Principles. Pediatrics. 2007; 120: 895 - 897.
36. 2007 We need a registry of living kidney donors Hastings Center Report. 2007, 7(6):1 p following 48
37. 2006 Children in Medical Research: Access versus Protection. Oxford University Press (Clarendon Press
38. 2006 Comparative Analysis of the Attitudes of Pediatricians and Genetic Counselors regarding testing and screening for CF and G6PD: Implications for Counseling and Policy. American Journal of Medical Genetics, 2006; 140A; 2305-2311.
39. 2006 Attitudes of Minority Patients with End-Stage Renal Disease regarding ABO-Incompatible List-Paired Exchanges American Journal of Transplantation 2006; 6:83-88.
40. 2006 Attitudes of Genetic Counselors towards Expanding Newborn Screening and Offering Predictive Genetic Testing to Children American Journal of Medical Genetics, 2006,140A; 2312-2319.
41. 2006 Informed Consent for Genetic Research involving Pleiotropic Genes: An Empirical Study of ApoE Research IRB: Ethics and Human Research, 2006; 28 (5): 1-11.
42. 2006 What is Wrong with the Physician Charter on Professionalism. Hastings Center Report, 2006, 36(4): 17-19.
43. 2006 Shared Decision Making in Deceased Donor Transplantation Lancet, 2006, 368 (9532): 333-7.
44. 2006 Ethical Issues in Haemophili Haemophilia 2006; 12 (Suppl 3): 30-35.
45. 2006 Does Familiarity Breed Acceptance? The Influence of Policy on Physicians Attitudes toward Newborn Screening Programs Pediatrics, 2006, 117: 1477-1484.
46. 2006 Ethical Considerations Related to Pregnancy in Transplant Recipients New England Journal of Medicine, 2006; 354: 1313-6.
47. 2006 Screening for Conditions that Do Not Meet the Wilson and Jungner Criteria: The Case of Duchenne Muscular Dystrophy American Journal of Medical Genetics, 2006, 140A: 914-922
48. 2006 Heterozygote Carrier Testing in High Schools Abroad: What are the Lessons for the U.S.? American Journal of Law, Medicine, and Ethics, 2006; 34(4): 753-764.
49. 2005 Lessons to be Learned from the 407 Process Health Matrix 2005, 15 (2) (Summer): 401-421.
50. 2005 Pediatricians Attitudes toward Expanding Newborn Screening. Pediatrics 2005, 116: e476-e484.
51. 2005 Reproduction and Transplantation: Report on the AST Consensus Conference on Reproductive Issues and Transplantation. American Journal of Transplantation, 2005, 5: 1592-1599.
52. 2005 The Participation of Minorities in Published Pediatric Research Journal of the National Medical Association, 2005; 97: 777-83.
53. 2005 Do peer guidelines or editorial policies affect the reporting and discussion of race and ethnicity in pediatric research? Accountability in Research; 2005, 12: 17-31.
54. 2005 Motivation, Risk, and Benefit in Living Organ Donation: A Reply to Aaron Spital Cambridge Quarterly of Healthcare Ethics, 2005; 14 (2): 191-4.  
55. 2005 Parental attitudes and beliefs regarding the genetic testing of children Community Genetics, 2005; 8: 94-102.
56. 2004 Ethical Assessment of Clinical Asthma Trials Including Children Subjects Pediatrics, 2004, 113(1): 87-94.
57. 2004 Ethical Issues in Identifying and Recruiting Participants for Familial Genetic Research American Journal of Medical Genetics, 2004; 130A: 424-431.
58. 2004 Balancing Protection and Access of Children in Medical Research: Has the Pendulum Swung Too Far? Perspectives in Biology and Medicine, 2004; 47: 519-536.
59. 2004 Informed Consent in Pediatric Research Cambridge Quarterly of Healthcare Ethics, 2004; 13: 346-358.
60. 2004 Restricting Living Donor/Cadaver Donor Exchanges to Ensure that Standard Blood Type O Waitlist Candidates Benefit Transplantation, 2004; 78: 641-6
61. 2004 Certificates of Confidentiality in Research: Rationale and Usage Genetic Testing, 2004; 8: 214-220.
62. 2004 Human Subject Protections in Genetic Research Genetic Testing, 2004; 8: 209-213
63. 2004 Attitudes of healthcare professionals and parents regarding genetic testing for violent traits in childhood Journal of Medical Ethics, 2004; 30: 580-586.
64. 2004 Convening a 407 PANEL for Research Not Otherwise Approvable: Precursors to Diabetes in Japanese American Youth as a case study. Kennedy Institute of Ethics Journal, 2004; 14: 165-186.
65. 2004 Incorporating newborn screening into prenatal care American Journal of Obstetrics and Gynecology, 2004; 190(4): 876-877
66. 2003 The ethics of predictive diabetes screening research in newborns. Archives of Pediatrics and Adolescent Medicine, 2003; 157: 89-95.
67. 2003 Are Minority Children Over- or Underrepresented in Pediatric Research? Pediatrics, 2003; 112: 890-895.
68. 2003 Whether and Why Pediatric Researchers Report Race and Ethnicity Archives of Pediatrics and Adolescent Medicine, 2003;157:671-675.
69. 2003 Parental attitudes regarding newborn screening of PKU and DMD. American Journal of Medical Genetics, 2003; 120A: 209-214.
70. 2003 Professional and Personal Attitudes about Access and Confidentiality in the Genetic Testing of Children: A Pilot Study Genetic Testing, 2003; 7(2): 123-130.
71. 2003 The Ethics of Type 1 Diabetes Prediction and Prevention Research. Theoretical Medicine and Bioethics, 2003; 24: 177-197.
72. 2003 Why ‘Doctor, what would you do, if this were your child?deserves an answer Journal of Clinical Ethics; 2003; 14 (1/2): 59-62.
73. 2003 Lethal Language, Lethal Decisions: Who Decides? Hastings Center Report, 2003; 33: 37-41.
74. 2003 Do Healthy Children Deserve Greater Protection in Medical Research? Journal of Pediatrics, 2003; 142: 108-112.
75. 2003 Effect of family history on disclosure patterns of cystic fibrosis carrier status American Journal of Medical Genetics, Part C (Seminars Med Genet.) 2003; 119C: 70-77
76. 2002 Media Appeals for Directed Altruistic Living Liver Donations. Perspectives in Biology and Medicine, 2002; 45: 329-37.
77. 2002 Solid Organ Donations between Strangers Journal of Law, Medicine, and Ethics, 2002; 30(3): 440-445.
78. 2002 Predictive Genetic Testing for Conditions that Present in Childhood Kennedy Institute of Ethics Journal, 2002; 12: 225-244.
79. 2002 Should All Living Donors Be Treated Equally? Transplantation, 2002; 74: 418-421.
80. 2002 Are research ethics standards satisfied in pediatric journal publications? Pediatrics, 2002; 110: 364-370.
81. 2002 Are Doctors Altruistic? Journal of Medical Ethics, 2002; 28: 68-9.
82. 2002 Do Genetic Relationships Create Moral Obligations? Cambridge Quarterly of Health Care Ethics, 2002; 11: 153-9.
83. 2002 In Defense of the Hopkins Lead Abatement Studies Journal of Law Medicine and Ethics 2002; 30:50-57
84. 2002 All Donations Should Not Be Treated Equally: A Response to Jeffrey Kahns Commentary Journal of Law Medicine and Ethics, 2002; 30 (3): 448-9.
85. 2001 Genetic Exceptionalism vs Paradigm Shift: Lessons from HIV Journal of Law, Medicine, and Ethics, 2001; 29: 141-8.
86. 2001 HIV Disclosure in the Pediatrics Setting Journal of Clinical Ethics, 2001; 12: 150-157.
87. 2001 The Ethics of Preadoption Genetic Testing American Journal of Medical Genetics, 2001; 104: 214-220.
88. 2001 Primum Non Nocere: Avoiding Harm to Vulnerable Candidates in an Indirect Kidney Exchange. Transplantation, 2001; 72: 648-654.
89. 2000 Confidentiality and the Surrogate s Right to Know Journal of Law, Medicine, and Ethics, 2000; 28: 137-43.
90. 2000 Ethical Issues in Genetic Testing of Children Archives of Pediatrics and Adolescent Medicine, 2000; 154: 873-9.
91. 2000 Ethical Issues in Increasing Living Kidney Donations by Expanding Kidney Paired Exchange Programs. Transplantation, 2000; 69 (8): 1539-43.
92. 1998 Children, Families and Health Care Decision Making Oxford University Press, (Clarendon Press),
93. 1997 Religious Exemptions to the Immunization Statutes: Negotiating a Balance between Public Health and Religious Freedom. Journal of Law, Medicine, and Ethics, 1997; 25: 202-9.
94. 1997 Five Major Themes in Bioethics Trends in Experimental and Clinical Medicine, 1997; 7 (Suppl 5): 8-17.
95. 1997 Health Care Decision Making by Children: Is it in their Best Interest? Hastings Center Report, 1997; 27(6): 41-5.
96. 1997 Ethical Issues in the New Genetics Trends in Experimental and Clinical Medicine, 1997; 7: 295-307.
97. 1997 Ethical Issues in Innovative Transplant Protocols Trends in Experimental and Clinical Medicine, 1997; 7: 254-65.
98. 1997 Overriding a Patients Refusal of Treatment after an Iatrogenic Complication New England Journal of Medicine, 1997; 336: 1908-10.
99. 1997 Ethics of a Paired-Kidney-Exchange Program. New England Journal of Medicine, 1997; 336: 1752-5.
100. 1997 Children as Research Subjects: A Proposal to Revise the Federal Regulations using a Moral Framework Stanford Law and Policy Review, 1997; 8: 159-176.
101. 1996 Adolescent Sexuality and Public Policy: A Liberal Response. Politics and the Life Sciences, 1996; 15: 13-21
102. 1996 Disclosing Misattributed Paternity Bioethics, 1996; 10: 114-130.
103. 1995 Cochlear Implants in Adults and Children JAMA, 1995; 274: 1955-61.
104. 1994 Justice for Children: The Child as Organ Donor Bioethics, 1994; 8: 105-26.
105. 1993 Moral Grounding for the Participation of Children as Organ Donors. Journal of Law, Medicine, and Ethics, 1993; 21: 251-7.


4th Annual Pharma R&D Asia Congress
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